During the last ten days there has been a noticeable improvement in the kinds and severity of symptoms: I slept well eight out of ten nights. (Interestingly enough, this coincided with a switch to a slightly lower dosage of melatonin.) Even in the two nights of relative insomnia, I did not suffer from the scary mental cycling in the void I had experienced before. There has also been no recurrence of dizziness. Since this was my initial symptom dating back to early December (recall here; here; here; here; here; and here) this is a great relief. During the last two weeks I lost about four days to incapacitating headaches (which are rarely in same place). But these headaches were less painful than I experienced in January and February (although -- and this was newish -- they were accompanied by weird nausea). Emotionally, they were not always easy because I find it very disappointing, even disorienting, to awake to a headache after a great night's sleep. In the greatest moment of all, on Tuesday I spent a few hours in the Spring Sun reading a science fiction novel (unaided by any devices). Because of that experience I feel that I have grounds for hope to recover most of my cognitive abilities. Bottom line, while I still spend a lot of time in bed, and reading is often exhausting, I am clearly suffering less in lots of ways than before.
The previous sentence also hints at the truth that I still suffer some symptoms. The two most pertinent ones are onset of fatigue/hunger and a general irritability, including noise sensitivity. I have tried to describe the fatigue before, but it now feels as if I had great deal of exercise a few hours ago (but without the accompanying happy hormones) even if I did nothing. This fatigue generates a hunger feeling. Initially, I assumed that my hunger was due to depression/boredom. And while I can't rule that out (since I surely have experienced both), the hunger accompanies the fatigue sensation like clockwork. Unsurprisingly, then, that I have steadily gained weight since I fell ill. (In very serious cases of Covid people tend to lose weight.) And while the fatigue regularly follows modest activity (short walks and reading on my kindle), it also seems to arise for no reason at all. Because it is now the main cause preventing 'normal' being-in-the-world, it is most noticeable to me. But it has been part of my covid from the start.
I have been relieved to learn that irritability is not an uncommon symptom in Covid long haulers. For, there is a kind of folk myth in our culture, I think, that experiencing vulnerability and the fragility of life, is somehow wisdom enhancing and personality improving. And while I certainly have more compassion for the incapacitated and, as I have hinted a few times, a better sense of how ableist many of the norms and structures of professional academic life are (and worth attacking--watch this space!), my self-image has taken a beating. Not, as one may expect, because I rediscovered that I really find too much joy in my work and reading more generally. I don't mind discovering I am more uni-dimensional than I have always strived to be. (Indulge me: using 'uni-dimensional' makes me feel like I am less cognitive impaired.) No, rather because I have been manifestly an impatient and often highly irritable patient. And while it's easy to point to how this is an effect of my inability to do even modest mental multitasking (which is true), it also points to larger distressing truth that my illness has amplified some of my worst character traits. (Yes, I write that despite reading John Doris on character before you did.)
There are still other signs of cognitive impairment. A few days ago, I managed to burn my left hand because I used the wrong cup in the microwave. And while this is the kind of thing that could have happened to me before Covid (I lose my keys and €50 notes regularly), it had never happened before.
Before I wrap up, I want to express my gratitude to all the kind notes, some brief some lengthy, of encouragement I have received. It is really very heartening. So, feel free to keep em coming! One subset of these letters is worth mentioning: a non-trivial percentage of the students in 'my' lecture course, who only 'know' me from watching last year's recorded lectures (that are being used to substitute for me) and my messages on canvas (and corresponding with me about the course), have sent wonderful touching letters. Often they confide their struggles with home learning relating it to how they imagine my experience (they know I have had covid--some even read these digressions). The students seems so much gentler this year.
One letter-writer -- you know who you are -- proposed a joint project on a historically and autobiographically informed pandemic bio-ethics that would get away from the management perspective that pervades medical ethics and would involve what Kant calls our duties to our animal self. This letter made me cry. (I won't try to analyze that now.) This friend allowed me to imagine a future version of me that could incorporate my long haul experience into an image of myself. I have already noted before the significance of my fellowship of long-haulers who in their sharing of their experience help me to cope with my own. But my response to this letter reminded me -- and this is part of my ongoing response to Callard (recall here; here; and here) -- how important others are in shaping our aspirational selves. As all experienced teachers know (recall) the effects of our shaping our students are often indirect and surprising. Realizing that I can still be shaped like this, too, has helped me come to terms a bit with the gently closed doors because I had to withdraw from some wonderful opportunities and the sheer tedium of being able to do nothing and enjoy so little.
glad you have some relief, "non-restorative" sleep has been tied into many of these kinds of symptoms but the likely (no doubt connected) culprit is our nervous systems which we know all too little about (as well as our ignorance about our immune systems and the feedback loops between the two)
here is audio of an article on long-haulers and medical care:
https://podcasts.google.com/feed/aHR0cHM6Ly9qaW16LmlvL3BvZGNhc3QueG1s/episode/aHR0cHM6Ly9hdWRtLmppbXouaW8vZmlsZS9hdWRtZmlsZXMvMjAyMS0wMy0wOC1UaGUgQXRsYW50aWMtdW5sb2NraW5nLW15c3Rlcmllcy1sb25nLWNvdmlkLm00YQ?sa=X&ved=0CAUQkfYCahgKEwig56KE8KPvAhUAAAAAHQAAAAAQnwI&hl=en
Posted by: dmf | 03/11/2021 at 04:48 PM
Eric this is a lot to respond to so I will only try a little .First thrilled that you seem to keep improving and makes me think you will be back in full force eventually. Eric, the force of nature! It must take huge effort just to keep up the effort. I’m also struck by some , but not all, of the similarities to aging, such as insomnia and brain fog. Awful for it to happen prematurely, By the way, ginger supplements are great for nausea. Keep going Eric. We’re all pulling for you!❤️ Barb
Posted by: Barbara Wimsatt | 03/11/2021 at 06:23 PM
Your posts on your recovery are fascinating and valuable. I never know what to make of chronic illness. I suffer from several myself and I've never been able to incorporate them into any philosophical theory except a theory that says I conceive of better versions of myself in other worlds. I haven't been at all impressed by what I've read on chronic illness by philosophers. I probably haven't read enough of it. I hope you'll write up your experience more later after you've fully recovered, which, I hope, will be soon.
Posted by: Eric Steinhart | 03/12/2021 at 03:27 AM
Eric I’m so pleased you’re getting the better of this, if slowly. Fantastic! Knuffel, Rick
Posted by: Rick Iedema | 03/16/2021 at 09:42 AM
Thank you for your kind comments, and encouragement, Eric.
Posted by: Eric Schliesser | 03/16/2021 at 10:09 AM